A fresh home for the European Rett community

Welcome to the new rettx.eu. We’ve rebuilt the site from the ground up to be faster, cleaner, and easier to use — on any device, in any country.

Behind every page on this site there’s a community of families, clinicians, and researchers across Europe working together to better understand Rett syndrome. The site you’re reading now is built for them.

What’s new

• A live data page. Our new /data/ page shows the registry’s real numbers — patients, mutations, countries, age distribution — updated continuously and aggregated so no individual is ever identifiable.
• A simpler, faster site. Lighter pages, better mobile experience, accessible by default.
• A clearer voice. We’ve reorganised the content around what families and partners actually look for: how to join, what we do, what the data shows.
• A foundation we can build on. The new platform makes it much easier for us to add languages, news, and richer data views in the months ahead.

What’s next

This is the start, not the finish line. In the coming weeks we’ll be sharing more news from the registry, adding Spanish translations across more pages, and publishing new data views as the rettX platform grows. If there’s a story you’d like us to tell or a number you’d like to see, we’d love to hear from you.

In the meantime, take a look at the live registry numbers or get in touch.

Thank you for being part of this community.