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We would love to hear from you. Use one of the email addresses below for direct contact, or send us a message through the form on this page.

rettX Registry

registry@rettx.eu

Questions about joining the registry, your data, or how it is used in research.

Rett Syndrome Europe

info@rettsyndrome.eu

General enquiries, partnerships, and the broader European federation.

Press & partnerships

registry@rettx.eu

Media requests, research collaborations, and institutional partnerships.

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If your message involves health information about a registered person, please email registry@rettx.eu directly rather than using the form below — for your privacy.

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Join the European Rett syndrome registry and help advance research and care.