Because every story counts — and every data point brings us closer to a cure.
Rett Syndrome is a rare genetic neurological disorder that primarily affects girls and leads to severe cognitive and physical impairments. By contributing to this registry, families help build a clearer picture of how Rett impacts lives across countries and regions. Your participation fuels research, improves care, and strengthens the voice of the community.
1
Sign-up to rettX secure area, using your email or social account. Email verification will be required.
2
Provide detailed patient information and attach proof of diagnosis for validation by rettX.
3
Once the diagnosis is validated, access the platform and manage your patient information.
4
Access and participate in open surveys, view the history of actions, and contribute to ongoing research efforts.
You’re just one click away from making a difference
